wow! yeah the budesonide wasnt working so they put me on prednisone. had to decrease the dosage quicker than preferred due to awful side effects. it unfortunate that people are only getting 10% for such a dramatic diseases.
right now they have me on budenoside and mesalamine. its only been documented for about a month, and theyre already recommending the MEB. when i see the GI doctor in a couple weeks im going to make sure i let him know to be very specific when documenting (hes off base).
thank you so much. it definitely came unexpectedly of course . so im just looking for all the advice i can get. expecting the ball to start rolling middle of september once i finish my first round of steroids.