I'm hoping to get some help and my military MEB attorney has been less than helpful. (I'm contemplating hiring a private attorney at this point).
I was diagnosed with a rare medical condition in April and promptly given a referral to IDES and a P3 profile limiting all my physical activity. It's a rare condition that took over 2 years to get a diagnosis from a neurologist. I was enrolled in IDES and my MEB started in June. I went to my VA exams in July and received my NARSUM. There were some errors that I wanted corrected so my attorney requested an IMR with the intent to appeal afterward. The NARSUM upheld my duty limiting condition and found that condition unfit for continued service.
The IMR doctor, after talking with me asked if I was receiving any care. I mentioned I asked for a referral to a specialty clinic (outside the DoD) that was granted and I have an appointment coming up for follow up care for my diagnosed condition (The NARSUM notes that this appointment is for follow up treatment). The IMR doctor told me her recommendation was to wait for more genetic test results and she thought I was diagnosed prematurely. Apparently, this is the recommendation she gave to the MEB president/supervisor or whoever makes final determination and they placed my MEB into deferred status pending my test results.
This is frustrating because only 25% of people with this rare condition get positive results. 25% get negative results, and 50% get what are called Variants of Unknown Significance (VoUs). I fall in the VoU category, so I'm concerned the doctors looking at the records will claim I don't have my diagnosed condition. The IMR doctor, as far as I know without my written or otherwise permission, contacted my private doctor I was going to for follow up care and received me medical records. I'm unclear if this was a HIPPA violation or if these should be able to be used against me.
I just want the process to keep moving. I had minor concerns with mistakes in the NARSUM, (IE saying a gait disorder was related to tinnitus instead of my overall muscle condition problem). Do I have options at this point, the MEB hasn't made any determination, isn't there supposed to be a strict timeline? It's been over 30 days sense my IMR with no movement on my case.
Please any advice would be appreciated.
I was diagnosed with a rare medical condition in April and promptly given a referral to IDES and a P3 profile limiting all my physical activity. It's a rare condition that took over 2 years to get a diagnosis from a neurologist. I was enrolled in IDES and my MEB started in June. I went to my VA exams in July and received my NARSUM. There were some errors that I wanted corrected so my attorney requested an IMR with the intent to appeal afterward. The NARSUM upheld my duty limiting condition and found that condition unfit for continued service.
The IMR doctor, after talking with me asked if I was receiving any care. I mentioned I asked for a referral to a specialty clinic (outside the DoD) that was granted and I have an appointment coming up for follow up care for my diagnosed condition (The NARSUM notes that this appointment is for follow up treatment). The IMR doctor told me her recommendation was to wait for more genetic test results and she thought I was diagnosed prematurely. Apparently, this is the recommendation she gave to the MEB president/supervisor or whoever makes final determination and they placed my MEB into deferred status pending my test results.
This is frustrating because only 25% of people with this rare condition get positive results. 25% get negative results, and 50% get what are called Variants of Unknown Significance (VoUs). I fall in the VoU category, so I'm concerned the doctors looking at the records will claim I don't have my diagnosed condition. The IMR doctor, as far as I know without my written or otherwise permission, contacted my private doctor I was going to for follow up care and received me medical records. I'm unclear if this was a HIPPA violation or if these should be able to be used against me.
I just want the process to keep moving. I had minor concerns with mistakes in the NARSUM, (IE saying a gait disorder was related to tinnitus instead of my overall muscle condition problem). Do I have options at this point, the MEB hasn't made any determination, isn't there supposed to be a strict timeline? It's been over 30 days sense my IMR with no movement on my case.
Please any advice would be appreciated.