So...
I received my NARSUM back today from my PEBLO. I am really worried about it, and I really am feeling overwhelmed. My PEBLO is very hard to reach, I've only seen him twice in 3 months and he is leaving for the month of July! Anyways, I was hoping
@maparker and you guys could shed some clarity in relation to the failing condition of PsA.
"Immunosuppressive retinoids If checked, list medication(s): Humira Specify condition medication used for: psoriatic arthrits/psoriasis Total duration of medication use in past 12 months: < 6 weeks 6 weeks or more, but not constant Constant/near-constant"
-6 weeks or more, but not constant is checked.
*I have an issue with that. To give a brief rundown... I was on Humira for approximately 8 months prior to PCS'ing last year. When I arrived on station here at JBLM, it took about 3 months to get a referral to dermatology, then rheumatology etc... Once being seen by a Rheumatologist, he went with a different route first and I did Otezla for about 3 months. Once we deemed that Otezla was not helping, Humira was then perscribed again.
* I have clinical notes, stating that Humira clears up an exacerbation, and without out it, symptoms have gotten worse.
**So my question...
Yes, I had not been taking Humira for more than 6 weeks at the time the NARSUM was written. I was actually literally only on it for 5 weeks at the time!!! However this will be a medication I am on for the rest of my life. The rating per the VASRD is very different from "6 weeks" to "constant/near constant"...
I just feel like the Army is going to get one over on me with this one. My PEBLO instructed me to take this up with JAG, I just have no idea what to expect with them.
Do you all have any insight on this. I know
@crag83 said you received a letter stating it will be taken for the rest of you life. I believe I will call my Rheumatologist tomorrow and ask for the same. Is there anything else I can and/or should do???
Thanks guys. I appreciate you taking the time to read through my post. I really value your input at this critical point in time. Thanks again!!!