Narcolepsy Ratings

SeaSarah

New Member
Registered Member
I have seen a lot of comments on narcolepsy starting off at a 10% rating but then people getting it up to 40-80%
Anyone have input on how they did it? What was the supporting documentation to increase the rating? And did you get a lot of push back with the appeal?

Thanks!
 

AKtrooper345

PEB Forum Regular Member
Registered Member
80% narco here. If you don't have documented narcoleptic episodes or cataplectic episodes, you're going to get low balled. I found the DBQ for narcolepsy on the VA website, reached out to my sleep doctor and had him use the exact verbage in an ALTA note.

Narcolepsy is also rated in the same scale as epilepsy. Seizures are to epilepsy what narcoleptic/cataplectic episodes are to narcolepsy. A lot of VA raters will look for the word seizure in your medical record and, being that they will not find it, will rate you at 10%. I recommend getting your sleep specialist to write a MFR that shows this link. Better yet, have your sleep doctor fill out the VA DBQ and put it in your medical records.
 

mun0zrene

PEB Forum Regular Member
Registered Member
80% narco here. If you don't have documented narcoleptic episodes or cataplectic episodes, you're going to get low balled. I found the DBQ for narcolepsy on the VA website, reached out to my sleep doctor and had him use the exact verbage in an ALTA note.

Narcolepsy is also rated in the same scale as epilepsy. Seizures are to epilepsy what narcoleptic/cataplectic episodes are to narcolepsy. A lot of VA raters will look for the word seizure in your medical record and, being that they will not find it, will rate you at 10%. I recommend getting your sleep specialist to write a MFR that shows this link. Better yet, have your sleep doctor fill out the VA DBQ and put it in your medical records.
I'm a little confused by what youre saying... To clarify, you suggest for my sleep specialist to fill out the DQB and to also state the amount of "episodes" i get throughout the day/week/month? what's an ALTA note? and am I too late for this? my package is being sent to AFPC this week or next week for their IPEB, I have my follow up with sleep specialist in 5 days, should I still try to get it? My concern is being rater below 30% and not be able to medically retired and just get kicked out the door with nothing but separation and maybe severance pay..
 

AKtrooper345

PEB Forum Regular Member
Registered Member
I'm a little confused by what youre saying... To clarify, you suggest for my sleep specialist to fill out the DQB and to also state the amount of "episodes" i get throughout the day/week/month? what's an ALTA note? and am I too late for this? my package is being sent to AFPC this week or next week for their IPEB, I have my follow up with sleep specialist in 5 days, should I still try to get it? My concern is being rater below 30% and not be able to medically retired and just get kicked out the door with nothing but separation and maybe severance pay..
Yes, I def suggest you have them fill it out. I had my doctor fill out the DBQ for my ratings reconsideration and was changed from 10% to 80%. Narcolepsy is rated on the number of narcoleptic episodes you have a week. Your doctor needs to clearly enumerate your number of occurrences a week in your medical records (ALTA notes). You can find the ratings table in the VASRD to ballpark what your percentage would be.
 

mun0zrene

PEB Forum Regular Member
Registered Member
Yes, I def suggest you have them fill it out. I had my doctor fill out the DBQ for my ratings reconsideration and was changed from 10% to 80%. Narcolepsy is rated on the number of narcoleptic episodes you have a week. Your doctor needs to clearly enumerate your number of occurrences a week in your medical records (ALTA notes). You can find the ratings table in the VASRD to ballpark what your percentage would be.

Okay thank you a lot, when you got that the 10% rating, was that from AFPC right after the IPEB? their initial rating? how easy was to actually get the rating changed? thanks man
 

pyhasanon

New Member
Registered Member
Unfortunately, not all sleep doctors are willing to fill in the form, and they are not obligated nor required to, and they know this... Some medical facilities even have it as a standard to not fill DBQs in at all... I am also told by the PEB offices that a DBQ is typically filled in by your physician as a response for an appeal as your "new evidence", not as the initial submission, but that doesn't mean you shouldn't try... I definitely can see it as beneficial... Also, the DBQ essentially asks the same questions they will ask you during your C&P exams... The VA Rep during the C&P exams can provide the same information that the DBQs will provide... However, as mentioned, still try to run one through your sleep doctor, they may be willing to fill it in for you, and get it into your initial package...
 

Maz_Reflektor

PEB Forum Regular Member
Registered Member
Diagnosed narco here......and ironically, I am going through an MEB for my back (degenerative disc disease and L5-S1 herniation). In an appointment earlier this week on FT Campbell, I specifically mentioned the VA DBQ and asked my Doctor to clearly articulate how many sleep attacks I have per week. In addition, I am keeping a daily sleep log of the hours I sleep (both at night and sleep attack naps throughout the day). I plan to give this sleep log to the VA Doc when I do my C&P for narcolepsy.
 
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